Awareness & Advocacy (Page 3)

Raising awareness about ALL headache disorders is the job of EVERYONE with ANY headache disorder. None of us are in this alone. We need to work TOGETHER to raise awareness for EVERYONE. EVERY headache disorder matters. What is one way that you can support awareness for a headache disorder you do not have?Read More →

Although Migraine and other headache disorders can be isolating, none of us are truly alone. Each one of us is affected by the other. Our successes, failures, and setbacks are shared. Give an example from your own experience that reflects our interconnectedness.Read More →

Migraine makes us vulnerable. Fears of stigma cause us to hide our symptoms. Even when we're with those who understand, our hiding continues. If we're ever going to break down stigma, we must first become visible. That requires each of us to let down our guard, stop hiding, and let our vulnerability show. It's time we showed the world how strong we really are.Read More →

Cluster Headache is about as prevalent as muscular sclerosis and is characterized by periodic cycles with attacks occuring in frequency of every other day up to eight times per day. Cluster Headache is often referred to as "Suicide Headache" because the attacks are so severe. Patients with Cluster say the pain is worse than anything they've ever felt, including gunshot wounds, broken bones, and unmedicated childbirth.Read More →

People with Migraine or other headache disorders don't fit easily into modern society. The lights are too bright, sound is too intense, and much of what others consider "fun" will make us sick. Yet people with Migraine have always found creative ways to leave their mark on the world. Despite your own challenges, how are you a "legend" to fellow patients?Read More →

In relating other people living with Migraine, Cluster Headache, or other headache disorder, it's important that we try to do the right thing. However, doing what's right isn't always clear or easy. Doing the right thing may not always be well-received. What does it mean to do the right thing when helping fellow patients?Read More →

Managing Migraine, Cluster Headache, or other Headache disorders isn't just about finding the right medical treatment. Tracking our attack frequency, identifying and avoiding triggers, and making healthy lifestyle choices are all essential. These healthy habits don't always come easily. That's when asking a trusted friend for help can make a difference. Accountability increases our chances of making lasting, positive changes. Read More →

Living with Migraine or other headache disorders, have you ever felt alone, lacking purpose or direction? Have you found your place in this world or are you still searching? Has someone else been the "light" that helped you find your way?Read More →

In our search for effective treatment, it's easy to forget others. What steps can we take to make sure no one else is left behind?Read More →